BRIAN is an online app which has been developed by The Brain Tumour Charity to help people cope with a brain tumour. At The Lewis Moody Foundation we are proud to help fund this innovative new system to help all those affected by a brain tumour.
BRIAN will help you – and those supporting you – to understand how you are doing and to make better-informed decisions.
BRIAN has been designed for all kinds of people, whether you are living with a brain tumour, caring for someone who is, or you work in healthcare or research. BRIAN allows you to record your entire brain tumour experience in one place – you can add symptoms, treatments, side effects, appointments and much more. You can also share your data with anyone you trust – such as family, carers and your healthcare team – enabling them to better understand your situation.
Calendar: See events, treatment & care entries and much more.
Quality of life: Track quality of life, including symptoms and emotions.
Challenges: Complete challenges on a daily basis to keep your brain active.
Treatment and care: Keep track of treatments, appointments and medications.
Side-effects: Track side-effects felt from medication or treatments.
Questionnaires: Help researchers and The Charity by completing questionnaires.
Tumour log: Record information about tumour(s) and how they change.
Clinical trials: Find clinical trials and track trial involvement.
Benefits: Keep track of benefits and assistance received.
Invite users: Invite healthcare professionals or others to access your data.
How sharing your experience helps
Ten years’ of brain tumour data from NHS Digital and Public Health England has been obtained and used to build insights into BRIAN for things like treatments offered, paths to first treatment and tumour incidence per region.
There is also a daily check-in feature, which allows you to record how you’re doing, emotionally, physically and cognitively on a day-to-day basis. BRIAN can combine these daily snapshots to give you and people supporting you a broader perspective on how you are.
By recording and allowing access to your anonymised data, researchers will better understand people’s quality of life when living with a brain tumour diagnosis. They can also use the collective experiences of patients to drive forward research and help tackle brain tumours for good.
For more information about BRIAN please visit The Brain Tumour Charity page.
Get in touch
Please bear in mind that BRIAN is a work in progress and as with any new and pioneering product, we will be working hard to improve and enhance it as we move forward.
You can sign up to BRIAN and start using it to track your brain tumour journey no matter where you live in the UK or the rest of the world. However, the background data that currently drives all the insights within BRIAN comes only from patients based in England.
Regardless of where you’re living, we know signing up and entering your data will help to improve our understanding of brain tumours and advance us faster towards a cure.
We’d love your feedback on anything you think that we could do better, so we can make BRIAN as great as possible. Get in touch using the contact form in BRIAN.