Who we are
The Lewis Moody Foundation is administered by The Brain Tumour Charity, who is the Data Controller and we are registered with the Information Commissioner’s Office as a Data Controller under reference Z7239747 for all of our activities. In our policies, ‘we’, ‘us’ and ‘our’ refers to The Brain Tumour Charity, TBTC Trading Ltd and The Lewis Moody Foundation.
We are a registered charity no. 1150054 (England and Wales) and SC045081 (Scotland). The Brain Tumour Charity is a company limited by guarantee no. 08266522 and TBTC Trading Ltd is a company limited by guarantee no. 08855559. All entities are registered at Hartshead House, 61-65 Victoria Rd, Farnborough GU14 7PA.
All entities are wholly owned and controlled by The Brain Tumour Charity and all staff are The Brain Tumour Charity employees. We are registered with the Fundraising Regulator and follow their best practice code: Code of Fundraising Practice.
We are a member of the Association of Medical Research Charities, the Information Standard and the Helplines Partnership.
What personal data we collect and why we collect it
When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.
If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.
Any information that is submitted through our contact forms will be stored on our secure database and used to communicate with you for the purpose outlined in your submission.
If you leave a comment on our site you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.
If you have an account and you log in to this site, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.
When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.
If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.
Embedded content from other websites
Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.
Who we share your data with
We only share data where we are required by law or with carefully selected suppliers and trusted partners who do work for us for example third parties used to register you on a challenge. All our partners are required by their contract with us to treat your data as carefully as we do, to only use it as instructed and to allow us to check they do this.
How long we retain your data
We have adopted a data retention policy that sets out the different periods we retain personal information for in respect of these relevant purposes. The criteria we use for determining these retention periods is based on various legal requirements; the purpose for which we hold data and whether there is a legitimate reason for continuing to store it (such as in order to deal with any future legal disputes); and guidance issued by relevant regulatory authorities including, but not limited to, the Information Commissioner’s Office (ICO).
Personal information that we no longer need is securely disposed of and/or anonymised so you can no longer be identified from it. Some personal information may be retained by us in archives for statistical or historical research purposes although we will do this in a manner that complies with applicable data protection law.
We continually review what personal information and records that we hold.
What rights you have over your data
If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.
Where we send your data
Visitor comments may be checked through an automated spam detection service.
Your personal information
We hold any contact details you submit via this site, on our secure database and we promise never to share these with any other organisation for their marketing purposes. We hold your details so that we can provide you with the best possible service every time you contact us. We hold your personal information for as long as required to provide you with the information or services you have requested, to administer your relationship with us, to inform our research into brain tumours, to inform our supporters’ preferences, to comply with the law or to ensure we do not communicate with people who no longer wish to hear from us.
All paper records are stored on premises at our offices. These offices are securely locked when no members of staff are present and access is restricted and monitored during the working day.
In line with the principles defined in the Data Protection Act 2018 and the General Data Protection Regulation (GDPR), The Lewis Moody Foundation will ensure that personal data will be processed in ways that are:
- Lawful, fair and transparent
- Collected for specific explicit and legitimate purposes
- Adequate, relevant and limited
- Accurate and up-to-date
- Not kept for longer than necessary